For more information on Lorenzo’s Oil
These are the English versions of Lorenzo’s oil book.
In 1984, six-year-old Lorenzo Odone was diagnosed with adrenoleukodystrophy – an incurable genetic disease which destroys the brains of young boys. His parents, Augusto and Michaela, refused to give up hope and with great determination set out to research the disease and find a cure. Within only a couple of years they had discovered an oil which was able to halt the progress of the disease and Lorenzo, thanks to the oil, lived a further 25 years.
Augusto Odone tells the moving story of his life with Michaela and Lorenzo, Lorenzo’s illness and their fight to find a cure.
Congressional Luncheon Honoring Augusto Odone
During the Italian TV program “Heart of the days”
Augusto Odone has been interviewed on 12/12/2012. You can see it again on:
Lorenzo’s song sung by Phil Collins
In 1994, Michaela wanted to honor Lorenzo with a song. She wrote the verses with Lorenzo at her side, asking his approval for each line. Then she e-mailed them to Phil Collins, who answered immediately: “Don’t give the lyrics away; I want to put music to them myself.”
Here is Lorenzo’s song:
Cristina Odone and Keith Layden, the Director of CRODA
If the Liverpool Pathway had been around when my half-brother Lorenzo was diagnosed, he wouldn’t have survived a week
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Cristina Odone and Keith Layden, the Director of CRODA